ASCO Registry aims to help the cancer community learn more about the patterns of symptoms and severity of COVID-19 among patients with cancer, as well as how COVID-19 is impacting the delivery of cancer care and patient outcomes. The ASCO Registry is designed to collect both baseline and follow-up data on how the virus impacts cancer care and cancer patient outcomes during the COVID-19 pandemic and into 2021.
Their project can be accessed here: ASCO COVID19 Registry
ASH Research Collaborative’s (ASH RC) Data Hub launched the COVID-19 Registry and is currently capturing data on people who test positive for COVID-19 and have been or are currently being treated for hematologic malignancy. As data are received, near real-time observational data summaries will be reported for clinicians on the front line of the COVID-19 pandemic.
Their project can be accessed here: ASH RC COVID19 Registry
The American College of Surgeons (ACS) has developed the ACS COVID-19 Registry, which is now available to all hospitals seeking to capture meaningful data about the COVID-19 patients they treat. The overarching priority of this registry is to collect important clinical patient data for a disease about which little is known. This registry will collect data on COVID-19 patients who did not undergo surgery as well as COVID-19 patients who did.
Their project can be accessed here: ACS COVID19 Patient Registry
CIBMTR aims to collect detailed data regarding the diagnosis, treatment, and outcomes of COVID-19 infections in blood and bone marrow transplant recipients
Their project can be accessed here: CIBMTR COVID19 Registry
UK Coronavirus cancer monitoring scheme is a clinician led reporting project supported to enable tracking of cancer patients who have tested positive for COVID-19 across the United Kingdom. The aims of this project are to ensure adequate cancer care is being delivered where required across the country and to assess the impact on cancer patients. The project will collect information about prevalence of COVID-19 infections with associated anonymized data about site of disease and mortality.
Their project can be accessed here: https://ukcoronaviruscancermonitoring.com/
Global lung cancer related effort being led by Drs. Leora Horn (Vanderbilt-Ingram Cancer Center) and Marina Garassino (National Cancer Institute of Milan). Send an email to Jennifer Whisenant for more details on how to get involved: [email protected]
COVID-HEME is a peer-to-peer forum for physicians about the care of patients with hematologic malignancies during the COVID-19 pandemic. The goal of this collaborative platform is to improve and accelerate the knowledge and experience of physicians to optimize the management of patients during the pandemic. This project can be accessed here: https://lymphomahub.com/medical-information/covid-heme-forum-supports-hematologists-during-covid-19-pandemic
University of North Carolina (UNC) pediatric gastroenterologist Michael Kappelman, MD, MPH, GI fellow Erica Brenner, MD, and their collaborator Ryan Ungaro, MD from the Icahn School of Medicine in New York with the help from the North Carolina Translational & Clinical Sciences (NC TraCS) Institute at UNC-Chapel Hill have designed and launched an international IBD registry to capture the natural history and outcomes of children and adults with IBD in the context of COVID-19.
Using the Surveillance Epidemiology of Coronavirus Under Research Exclusion (Secure-IBD) registry, health care providers from around the globe can voluntarily report cases of IBD that also develop Coronavirus, their IBD medications, and the outcomes of Coronavirus hospitalization including recovery, hospitalization, and death.
Their project can be accessed here: https://tracs.unc.edu/index.php/who-we-are/announcements/1133-unc-launches-covid-19-ibd-international-registry
A secure, de-identified, international case reporting registry to guide rheumatology clinicians in assessing and treating patients with rheumatologic disease and in evaluating the risk of infection in patients on immunosuppression.
This project can be accessed here: https://rheum-covid.org/
A registry for COVID-19 in patients with chronic liver disease (with and without cirrhosis) and post-liver transplant, regardless of severity of COVID-19 (including asymptomatic patients detected through public health screening).
This project can be accessed here: https://covidcirrhosis.web.unc.edu/
A registry designed to capture pediatric and adult COVID-19 cases that are occurring across the world in patients living with sickle cell disease. The goal of the registry is to report on outcomes of cases of COVID-19 in this population of patients.
This project can be accessed here: https://covidsicklecell.org/
A universal and collaborative registry project to collect data on patients with liver disease or liver transplants who develop laboratory confirmed COVID-19.
This project can be accessed here: https://www.covid-hep.net/