The COVID-19 and Cancer Consortium (CCC19)

Other Efforts

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ASCO Survey on COVID19 in Oncology (ASCO) registry

ASCO Registry aims to help the cancer community learn more about the  patterns of symptoms and severity of COVID-19 among patients with  cancer, as well as how COVID-19 is impacting the delivery of cancer care  and patient outcomes. The ASCO Registry is designed to collect both  baseline and follow-up data on how the virus impacts cancer care and  cancer patient outcomes during the COVID-19 pandemic and into 2021.


Their project can be accessed here: ASCO COVID19 Registry

ASH RC COVID-19 Registry for Hematologic Malignancy

ASH Research Collaborative’s (ASH RC) Data Hub launched the COVID-19  Registry and is currently capturing data on people who test positive for  COVID-19 and have been or are currently being treated for hematologic  malignancy. As data are received, near real-time observational data  summaries will be reported for clinicians on the front line of the  COVID-19 pandemic. 


Their project can be accessed here: ASH RC COVID19 Registry

ACS COVID-19 Patient Registry

The American College of Surgeons (ACS) has developed the ACS COVID-19  Registry, which is now available to all hospitals seeking to capture  meaningful data about the COVID-19 patients they treat. The overarching  priority of this registry is to collect important clinical patient data  for a disease about which little is known. This registry will collect data on COVID-19 patients who did not undergo surgery as well as COVID-19 patients who did.  


Their project can be accessed here: ACS COVID19 Patient Registry

CIBMTR COVID19 Registries

 CIBMTR aims to collect detailed data regarding the diagnosis, treatment, and outcomes of COVID-19 infections in blood and  bone marrow transplant recipients


Their project can be accessed here: CIBMTR COVID19 Registry

UK Coronavirus cancer monitoring project

UK Coronavirus cancer monitoring scheme is a clinician led reporting project supported to enable tracking of cancer patients who have tested positive for COVID-19 across the United Kingdom.  The aims of this project are to ensure adequate cancer care is  being delivered where required across the country and to assess the  impact on cancer patients. The project will collect information about prevalence of COVID-19  infections with associated anonymized data about site of disease and  mortality. 


Their project can be accessed here: https://ukcoronaviruscancermonitoring.com/

TERAVOLT (Thoracic cancERs international coVid 19 cOLlaboraTion)

 Global lung cancer related effort being led by Drs. Leora Horn (Vanderbilt-Ingram Cancer Center) and Marina Garassino (National Cancer Institute of Milan). Send an email to Jennifer Whisenant for more details on how to get involved: [email protected]

COVID-HEME

COVID-HEME is a peer-to-peer forum for physicians about the care  of patients with hematologic malignancies during the COVID-19 pandemic.  The goal of this collaborative platform is to improve and accelerate the  knowledge and experience of physicians to optimize the management of  patients during the pandemic. This project can be accessed here: https://lymphomahub.com/medical-information/covid-heme-forum-supports-hematologists-during-covid-19-pandemic

SECURE-IBD Registry

University of North Carolina (UNC) pediatric gastroenterologist Michael Kappelman, MD, MPH, GI fellow Erica Brenner, MD, and their collaborator  Ryan Ungaro, MD from the Icahn School of Medicine in New York  with the help from the North Carolina Translational & Clinical Sciences (NC TraCS) Institute at UNC-Chapel Hill  have designed and launched an international IBD registry to capture the  natural history and outcomes of children and adults with IBD in the  context of COVID-19. 


Using the Surveillance Epidemiology of Coronavirus Under Research  Exclusion (Secure-IBD) registry, health care providers from around the  globe can voluntarily report cases of IBD that also develop Coronavirus,  their IBD medications, and the outcomes of Coronavirus hospitalization  including recovery, hospitalization, and death. 


Their project can be accessed here: https://tracs.unc.edu/index.php/who-we-are/announcements/1133-unc-launches-covid-19-ibd-international-registry

COVID-19 Global Rheumatology Alliance

A secure, de-identified, international case reporting registry to guide rheumatology clinicians in assessing and treating  patients with rheumatologic disease and in evaluating the risk of  infection in patients on immunosuppression.  


This project can be accessed here: https://rheum-covid.org/

SECURE- Cirrhosis Registry

A  registry for COVID-19 in patients with chronic liver disease (with and  without cirrhosis) and post-liver transplant, regardless of severity of  COVID-19 (including asymptomatic patients detected through public health screening).


This project can be accessed here: https://covidcirrhosis.web.unc.edu/

SECURE-SCD Registry

A registry designed to capture pediatric and adult COVID-19 cases  that are occurring across the world in patients living with sickle cell disease. The goal of the registry is to report on outcomes of cases of COVID-19 in this population of patients. 


This project can be accessed here: https://covidsicklecell.org/

COVID-HEP Registry

A  universal and collaborative registry project to collect data on patients with liver disease or liver transplants who develop laboratory confirmed COVID-19.  


This project can be accessed here: https://www.covid-hep.net/